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End of Life

Lewis ch. 11 End of Life and Palliative Care

QuestionAnswer
According to the Institute of Medicine what is the definition of “End of Life”? the period of time during which an individual copes with declining health from a terminal illness or from the frailties associated with advanced age even if death is not clearly imminent
What are the goals of end of life care? 1) provide comfort and support, 2) improve the quality of remaining life, 3) help ensure a dignified death
What are the technical defining characteristics of death? the irreversible cessation of circulatory and respiratory function or the irreversible cessation of all function of the entire brain including the brain stem
What condition exists if a person stops breathing, and their heart stops beating or if their brain does not work at all and we cannot do anything to fix it? Death
What sense is believed to be the last to go? hearing
In regards to the sensory system generally speaking what happens to the senses due to decreased oxygenation to the brain? Overall senses decrease, vision may blur, decreased sense of touch and pain, decreased sense of taste and smell
What happens to the heart rate and circulation as person approaches death? The heart rate slows and weakens, blood pressure falls progressively.
Why might a person’s body temperature be raised as they approach death? Due to disease process or changes to hypothalamic function
What are respirations like as a person nears death? Respirations may be slow, shallow, irregular, death rattle, or Cheyne-stokes respiration
Define Death Rattle. Noisy wet sounding respirations due to mouth breathing and mucous in the airways
What is a pattern of breathing characterized by alternating periods of apnea and deep, rapid breathing? Cheyne-Stokes respirations
How does decreased circulation affect the character of the integument as a person is dying? Extemities become pale, mottled and cyanotic. The skin feels cool first in extremities and then progressing to the torso.
How does the loss of muscle tone affect a person’s facial features and speech? Facial muscle lose tone. The jaw sags. Speech becomes difficult.
How does the loss of muscle tone affect swallowing and the gag reflex? Swallowing becomes increasingly difficult and eventually the gag reflex is lost.
What happens to the eyes as a person is dying? Vision blurs. Eyes may sink and glaze. Blink reflex is lost. Eyelids remain half open.
How does loss of muscle tone affect the GI and its function? Motility and transit diminish, leading to constipation, gas accumulation, distention, incontinence, and nausea. Pain medications may exacerbate dysfunctions.
What affect does the loss of muscle tone have on the urinary system? Function and ability to produce urine diminish. Loss of sphincter control can lead to incontinence.
Define brain death. Brain death is the irreversible loss of all brain function including the brain stem.
What condition exists if the cerebral cortex stops functioning or is irreversibly destroyed? Brain death
What part of the brain is responsible for voluntary action and cognitive functioning? Cerebral Cortex
What diagnostic criteria for brain death does the American Academy of Neurology recommend? Coma or unresponsiveness, absence of brainstem reflexes, and apnea
What are the current legal and medical standards for the pronouncement of brain death and disconnection from life support? All brain function must cease
What is an individual’s emotional response to the loss of a significant person? Bereavement
What is the lived experience in reaction to loss that develops from bereavement? Grief
How does grief affect a person? Grief is one of the most powerful emotional states and affects all aspects of a person’s life.
How can we anticipate the course of a person’s grief? We can’t. Grief and its expression are unique to each person.
What is pathologic grief? Grief does not wane in intensity after the first year.
What is conflicted grief? A person has ambivalent feeling toward the deceased.
What is absent grief? when the bereaved person appears to be coping and carrying on as if nothing has happened
How would grief that is prolonged, unresolved, or disruptive be termed? maladaptive or dysfunctional grief
What is grief that is helpful or assists the person in accepting the reality of death? adaptive grief
The Omnibus Reconciliation Act of 1990 is also known as what? the Patient Self-Determination Act
According to the Patient Self-Determination Act all institutions that participate in medicare must provide patients what? Written information concerning their right to accept or refuse tx, including the right to initiate advance directives.
What are advance directives? A person’s written wishes regarding medical care
Who can decide if organs may be donated? competent patient’s before death, family members after death
Why does the surgeon need to be notified right away about organ donation? because some organs must be used within hours after death.
A lay term for statements that give instructions about future treatment if a patient is unable to do so for himself. living will
A term used to describe a document designating the person or persons who should make health care decisions if a patient cannot make informed decision for himself. durable power of attorney for health care or medical power of attorney
A written document to a health care provider stating the patient’s wish to be allowed to die without heroic or extraordinary measures Directive to health care provider
Specific state laws that include a variety of directives related to an individual’s wishes regarding medical treatment and prolongation of life natural death acts
The federal law specifying that institutions participating in Medicare must provide written information to patients concerning their rights to accept or refuse treatment Omnibus Reconciliation Act of 1990 or Patient Self-Determination Act
A general term used to describe all documents that give instructions about future medical care and treatments Advanced directives
What are the signs of organ rejection? oliguria, fever, increasing edema, hypertension and weight gain
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